Snow-way!! O yeah, it snows properly in Scotland ;) In which Kath hits up the hospital for some more toxic sludge, builds a snowman and has managed – da da daaa!! – to get TWO SHOES ON!! – for the first time in at least five months :D

…although to be fair they were Dad’s shoes 😉 😄

So as per the plan, last Monday I was scheduled in for a full day back at the hospital for dressing checks and dose two of cyclophosphamide – along with the various other bags of stuff you need at the same time to stop you projectile vomiting and protect your bladder from the chemo.  I woke up horribly early (5.30am… So genuinely, horribly early!) and then as NOT PER THE PLAN, the car windscreen wipers were not working, despite two return visits from autoglass to fix them previously, after an accidental breakage during a routine windscreen replacement… So given I was still not feeling mega swish post-hospital anyway, Mum’s stress levels went through the roof as she was faced with a two hour journey on the motorway, in the rain, without a properly working car and a whiny delicate passenger, with a lot of people waiting to put drugs into the passenger… After a very nice polite conversation with customer services (using the calm voice that probably came across as very reasonable, but would have had myself and my two brothers peeing ourselves) we hopped (literally haha) into the rather erm… interesting… Landrover and went and got a hire car for the motorway bit and got down only a few hours late! I say interesting; now Dad is very fond of the Landrover, but it has a roll of duct tape in the front for a reason and it rains inside when you go round corners 😀 It also isn’t very easy to get into, but with making some epic huffing noises I have been managing to do some sort of scrambly “HUP!!!” type thing that a week or two previously would have been completely impossible. Autoglass are in trouble 😉

All the drug stuff went very well, although I am fed up of having knackered veins 😦 The inside of ones wrist is NOT a nice place to have a cannula in for hours. Bruising up like a peach still, several days later! Got a whole load of bloods taken and they were all spot on target, so I was allowed to proceed with all of the litres and litres of drugs – saline, something called mensa to protect my bladder and kidneys… Some anti-sickness thingy (ondansetron in liquidy form maybe?) and the cyclophosphamide itself. I was absolutely awash. Mum did little bits of nipping into the town centre, exploring hospital and nattering to keep me from dying of boredom. Dressing changes also went nicely – stitches out of both Toe Gap and The Wound – getting them out nipped like stink and The Wound is so epic it has needed steri-stripped and further dressing checks since and looks like it is probably going to leave a fairly fabulous crater type scar…

Hats off once again to the ward staff, they were very sympathetic and understanding about us being a teeny bit late – especially the wonderful lady who had already come in on what had been booked as a holiday to administer the drugs for me, as only a tiny handful of staff are allowed to handle the chemo until they have had a few supervised training sessions. The other car still isn’t fixed, but thankfully the only use the Landrover has been required for whilst Dad was away has been local trips to GP five minutes away to do my INR checks (every bloody two days) and dressing pokings. Warfarin is going well!! I am so far alllllmost managing to stabalise at about 5mg a day, so just tweaking a smidge to get me slightly higher into the 2-3 target range and then I might be able to get stabbed a little less often!!

Other than regular INR stabbings, I have managed to spend most of this week on the sofa getting rather worryingly addicted to Criminal Minds and NCIS – and have nearly finished the trilogy Fave lent me!! Also being at Scotland home, I have had a chance to eye up some books to take back down with me. Not that I am in any way short of books down at England home, but the heart wants what the heart wants 😉  Mog continues to thrive under the attentive love and care she receives when there are witnesses and other feeders…

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The precious angel is SO deprived; she was ecstatic with glee about being presented with a box of her very own and has spent the best part of the last 24 hours in said box, so that no one can take it off her. Poor baby. I had a wobbly few days post-chemo – Tuesday in particular I spent the whole day on the sofa trying not to puke. Only salt and vinegar pringles made me feel any better! Mum is a very wonderful Mum indeed, but her rather scary response to me whining about feeling sick  was to threaten me with immediate eviction if I puked on the carpet 😀 Since then I have been getting more ‘tiggerish’ as Mum puts it; just slowly getting back to feeling a bit more like myself. I have been trying to use my stick a lot less and pottering around the kitchen playing football with the cat has helped! I also had a very fun day washing a bath full of giant lego we picked up from a charity shop for my baby cousin… SO MUCH FUN 😀

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…and then as is probably obvious from the main pic and title, it snowed one day for hours and hours and because it is bloody freezing up here, it settled and I went OUTSIDE and made a snowman 😀 Yes, that is genuinely a snowman. It may be small and its eye and grass scarf may have fallen off in the time I went to grab my phone to take a picture, but it was too bloody cold to fix it and I have to be very careful with the cold so my fingers and more toes don’t fall off. Stop being mean and don’t bother with the comments about it looking like a turd, I’ve heard them all already. IT’S A SNOWMAN. The other exciting bit about that was that when I went outside, I grabbed Dad’s shoes and had two shoes on for the first time since… At least the start of October!!

Plan is currently to head back down on this coming Monday I think… “About bloody time!” Said Mum… Yeah, yeah, yeah… Pretty excited to see friends again 😀 In the meantime, the dressing on The Gap (which was a token bit of gauze for the last two weeks anyway) came off this morning! I now have two socks on and no foot dressings needed, so for the first time since JUNE – and I am not even slightly exaggerating!! – had a shower WITHOUT A WATERPROOF GIANT SOCK THINGY ON!!!! This went very well and although I was wondering how weird it would be, it was very much taken in my stride, as the more interesting/distracting bit of the shower was how much of my sodding hair is coming out 😦 The info on cyclophosphamide said it tends to cause hair loss in at least 30% of people and I had already had a bit of an impact off the rituximab from December… With ritux being a lot less toxic. So I was sort of already braced for it to be honest. It said it takes three to six weeks to start falling out if it is going to; I am now getting to about three weeks since dose one and the last couple of days it has been coming out at quite an alarming rate, every sodding time I touch my head. So showering was quite amusing! I genuinely do mean amusing, because for whatever mentally certifiable reason, my reaction was to giggle :/ I  guess it is better than me having stood in the shower bawling my eyes out, but I don’t really understand why I am finding it quite so funny!! I don’t exactly put a lot of effort into my hair – it never gets straightened or blow dried or dyed etc. and as mentioned before, I don’t even use a hair brush or dry it after a shower, but I am going to have to have a serious think about what to do now!! I don’t want to scalp it all off immediately, as it really could just thin out a lot and settle there… But it definitely needs a lop – question is, how short?? If I was a delicate little waif – and having naturally curly hair, I would obviously go for a crop of ruffled ringlets that would make me look like a pixie… But if I am brutally honest with myself, I would struggle to look very pixie like and it would likely instead make my face look rather horrendously round 😀 If anyone wants to volunteer to attack my hair, be my guest as it very well may all fall out a few days later anyway 😉

To round things off for this post, amuse yourselves with my Dad’s reaction to the news of my hair falling out this morning… “Ohh, that’s not good. You will be careful to look after the shower drains, won’t you?!” Ahhhh Dad priorities 😀  He has also suggested more recently, whilst watching a former school rugby legend (two years above me, so I sadly can’t claim friendship :D) captain Scotland to DESTROY Wales earlier hehe (stop crying Maria), that I should get a prosthetic toe to smuggle drugs in. It is an absolute wonder to myself and everyone else after reading this, that I have turned out SO WELL ADJUSTED. Or will at least explain to the sceptical scoffers, quite why I am a little bit weird…

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